March 22

We're still in Disgusta, and we still don't know when Will's being transferred to Egleston. We'll hopefully have a definite transfer day tomorrow. Will had a rough afternoon. He was really agitated and couldn't get settled. His heart rate was really high and I was concerned about him. He had been getting pain medication as needed in Athens, but they don't give pain meds just because a baby is intubated here. I have no idea why. Wouldn't you want pain medicine if you had a plastic tube down your throat? They kept trying to settle him by changing his position, swaddling him, etc, but nothing worked. I kept telling them that he needed pain meds and they finally gave him something. After that he settled down and has been resting peacefully tonight. I'm going to have to talk to his doctor tomorrow and get this whole thing straightened out. It's not the time to change his medication right before he's transferred to yet another hospital to undergo surgery. Lord I'll be glad when this is over!!!!