The Amazing Twin Adventure

We had a fun day today. We went to the park with Zach's mom and big sister who is Mason's age. She and Mason had a big time and were too cute playing together. I am, as always, in awe of Zach's mama. Although she is struggling with the loss of her son, she is determined to have something positive come out of this. She continues to do incredible work for the March of Dimes and is working to set up a foundation in Zach's name. Her tenacity, faith and positive attitude are to be admired and we are praying for God to keep healing their family. Another way to support them is by checking out Jessica's online store. She does amazing monogram work, and has adorable dresses for little girls. Check it out at http://pigtailspolkadots.blogspot.com/
Will had a good day for the most part. Today's concern is that his blood pressure was a bit elevated last night, so they did an ultrasound of his kidneys and a urinalysis to make sure there were no renal issues. So far everything looks normal, but we'll have to get the all-clear from the renal docs tomorrow before we'll know for sure. I'm still getting conflicting reports from the doctors. Today the pulmonologist told me that he talked to the ENT about trying Will off of CPAP and she agreed. They were supposed to try that today, but I'm not sure if they did because they were moving the TICU today and it was pretty crazy down there. The pulmonologist also told me that he discussed the surgical option with the ENT, but he said he doesn't think it will be necessary because he thinks Will's airway will strengthen as he grows. When I pointed out that that was the complete opposite of what the ENT told me, his answer was "Well, no one really knows, we can't predict the future." Well, duh, but it would be helpful if the doctors could at least agree on the best plan for treatment. Arrrggghhhh. This is so frustrating!!!!!